BROKEN-hearted parents whose miracle baby lived for just 46 days are hoping to give other families the chance to record lasting memories.
Farrah, the daughter of Jane Moulton and husband Mahmoud Seliman, weighed just 1lb 2oz when she was born premature last September.
The parents, from Radcliffe, kept a bedside vigil throughout Farrah’s short life as she battled a hole in her heart and struggled to put on weight.
The whirlwind of Farrah’s daily health meant Jane and Egyptian-born Mahmoud, aged 36, did not have time to think about recording the day-to-day memories and milestones.
Through Farrah’s Forget-me-not Families, Jane and Mahmoud, a retail and hotel worker, are raising money to buy iPads installed with a special app to help parents on neo-natal wards document these special moments.
Council worker Jane, aged 43, said: “Farrah was perfectly beautiful. She amazed us daily and was so breathtaking. Our time with Farrah was the best, most precious and most testing 46 days of our lives as parents.
“After she died we were not left with very much, and somehow you have to try and keep the spirit of that person alive for the rest of your life.”
Jane lost Farrah’s twin in her early pregnancy and at 20 weeks discovered her daughter had a congenital heart condition.
Due to pre-eclampsia, premature Farrah was delivered by Caesarean section at St Mary’s Hospital in Manchester.
Aged two weeks she was transferred to the Neo-natal Intensive Care Unit (NICU) at the Royal Bolton Hospital — where strict infection policies meant there were limited visiting opportunities for extended family.
Taking photographs was difficult because babies’ eyes are sensitive and camera flashes can cause lasting damage.
Jane said: “Family is so important and the iPads could be used to help relatives keep in touch and become part of the baby’s life from a distance.”
Farrah’s heartbeat became irregular, she had problems with her lungs and suffered infections, having to be resuscitated by several times. She died in early November.
The couple want the app to link to information and support from the British Association of Perinatal Medicine, premature baby charity Bliss, the National Institute for Health and Care Excellence and stillbirth charity Sands.
Jane said: “We would love for Farrah’s Forget-me-not Families to become a registered charity. Losing a child is devastating and you never want to forget a minute of your time together.
“For families who never get to take their child home, they will have a journal to treasure.”
To make a donation to Farrah’s Forget-me-not Families: go to gofundme.com/6jgkjc. If you can help design the app, call Tui Benjamin on 01204 537254.