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Tottington parents devastated to find out son has complex heart condition
4:15pm Friday 2nd May 2014 in News
WHEN Tottington parents Rebecca Chesworth and Ryan Crook found out their son was born with a complex heart condition, they were understandably devastated.
They had never heard of the condition with which three-month-old Ethan had been diagnosed.
But they were able to call on the help of Lagan’s Foundation, a charity that provides support and help to “heart families”.
The charity was inspired by the memory of baby Lagan Katherine Anne Grant, who lost her fight against a heart condition when she was just 15 weeks old in April, 2011.
The foundation is the UK’s only charity dedicated to providing help to parents in their own home.
And this Sunday, the family will be attending Lagan’s Foundation fun day car boot sale in Bury, which will feature a dog show, funfair and cartoon characters amid a range of activities.
The aim is to raise money to train volunteers to help families who have children with heart conditions and/or feeding difficulties.
Two-year-old Ethan was born with ‘tetralogy of Fallot’, a congenital heart defect, and has already undergone two open heart surgeries under the care of Alder Hey Hospital and is doing well.
Miss Chesworth, aged 22, said: “I was devastated. I knew something was not right, but I had never heard of the condition tetralogy of Fallot. It really helped having someone to talk.”
She added “The charity has become so big and helps families across the country.
“These children are so inspiring — even when Ethan was in hospital he was still smiling.”
She added: “I didn’t need a volunteer but I can pick up the phone to the charity anytime for advice.
“We will be attending the fun day and Ethan is looking forward to it.”
The family fun day takes place at Burrs Country Park from 9am to 3.30pm.
For further information: visit lagans.org.uk.
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