AN 11-year-old girl who suffers from a rare generic condition has raised hundreds of pounds for a charity set up in her name.

Eleven-year-old Annabelle Griffin suffers from Vascular Ehlers-Danlos Syndrome (VEDS), the most serious form of Ehlers-Danlos Syndrome (EDS).

The rare genetic condition causes collagen deficiency and means Annabelle is at daily risk of her internal organs and arteries spontaneously rupturing.

Annabelle recently took part in the MyRide London with dad Jared and Christina, the patient coordinator for Annabelle’s Challenge.

Annabelle raised £350 for the charity and thanks to international support, has now raised £2,200 for Annabelle’s Challenge, which will help to fund future research into vascular EDS.

Jared said: "It came about because we are struggling to fundraise at the minute due to the virus.

"It was quite a mean feat for her to do, especially with her condition, but she did really well.

"We have managed to engage people in our community to start fundraising and spread awareness."

The challenge was 19km long- with Annabelle completing the first 14 before returning for the last kilometre.

MyRide London is a huge festival of cycling that takes place each year.

It’s a free event that can be done anywhere in the world and is open to all ages and all abilities.

This year's edition was done virtually due to current restrictions and safety measures.

Annabelle has started secondary school this month, beginning in Year 7 at The Elton High School.

She hopes to be able to spread awareness of her condition to her classmates, as well as fundraise more when it is easier to do so.

Jared also hopes to do more fundraising activities in the Bolton and Bury areas.

He added: "It was just good for us to do something in Bury and get involved in something in a safe way, so it went very well in that respect.

"It is always a fine balancing act with what she can get involved in but what she has found is that she loves cycling and is very good at it."